From cchappel at med.unc.edu Fri May 10 17:37:08 2024 From: cchappel at med.unc.edu (Chappell, Chad) Date: Fri, 10 May 2024 21:37:08 +0000 Subject: [Ace-recruitment] IBIS Network - Week In Review - 5/10/2024 In-Reply-To: References: <930D128C-CAB7-4A5B-89BC-71F8E17C8170@med.unc.edu> <99824892-1079-44F9-9453-259A87D10171@med.unc.edu> Message-ID: IBIS Week In Review 5/3 & 10/2024 IBIS LENA -Many thanks to Sharnya for her amazing work with the LENA project - she is moving on to focus on her dissertation. -Meghan would like to introduce Dante Rogers, who is now coordinating the LENA R01 from UMN. We are lucky to have Dante supporting our project but he will be starting a PhD program in August and transitioning to a different university at that time. -There is a new project email (lena-ibis at umn.edu) that we should all use for LENA communication. ACE Investigator?s Meeting Please see the message below regarding registration for the upcoming ACE Investigator?s Meeting. Best of luck to those IBISes presenting and attending INSAR Down Under! We look forward to the stories once you return. Happy Mother?s Day to all of you moms in the IBIS Network! Chad ******* Dear ACE Investigators and Panel Presenters: Registration for the 2024 NIH ACE Investigator Meeting (June 3-4) is now available. The meeting is open to all official members of your ACE research team and staff, so we encourage you to share the following announcement below with your ACE colleagues. As Senior/Key personnel of the ACEs (i.e., PIs, MPIs, Core lead, Project leads, and Co-Investigators) and panel presenters, you?ll receive a separate Zoom Access link to join the meeting as speakers/panelists. A preliminary agenda is available on the registration page and slight revisions are anticipated. A final agenda will be distributed a few days before the meeting. Regards, ACE Investigator Meeting Planning Committee __________________________________________________ ANNOUNCEMENT 2024 NIH Autism Centers of Excellence (ACE) Investigators Meeting June 3-4 (11:00 AM ? 4:00 PM EDT / 8:00 AM ? 1:00 PM PDT) All virtual Overview The Autism Centers of Excellence (ACE), is an NIH program that supports large-scale multidisciplinary research studies on the diagnosis, causes, and interventions/services for autism spectrum disorders (ASD). The first half-day of the meeting will feature research updates and progress on advancing each ACE?s Plan for Enhancing Diverse Perspectives (PEDP). The remainder of the meeting will consist of ACE research panel presentations on the following topics: * Adulthood and Aging for the US ASD Population * Polygenic Risk Scores (PGS) in ACE Research * Services Across the Lifespan for Individuals with ASD * Machine Learning Approaches and Application in the ACEs Participants The ACE Investigator Meeting is open to all current researchers at ACE Centers & Networks and NIH staff. Register here: https://lp.constantcontactpages.com/cu/wfu5Gfu Registration deadline: May 30 -------------- next part -------------- An HTML attachment was scrubbed... URL: From cchappel at med.unc.edu Fri May 17 17:54:11 2024 From: cchappel at med.unc.edu (Chappell, Chad) Date: Fri, 17 May 2024 21:54:11 +0000 Subject: [Ace-recruitment] IBIS Network - Week In Review - 5/17/2024 In-Reply-To: References: <930D128C-CAB7-4A5B-89BC-71F8E17C8170@med.unc.edu> <99824892-1079-44F9-9453-259A87D10171@med.unc.edu> Message-ID: <06E67645-7A0E-4649-BC96-42D6C627A168@med.unc.edu> IBIS Week In Review 5/17/2024 IBIS EP -Over Recruitment Requested -While future funding (e.g. renewal, supplement) is not yet determined, some general changes about the EP recruitment have been implemented. -The objective is to now try to enroll and follow a total of 53 to 54 subjects, instead of 50. -BuildClinical out of the Wash U Admin Core and fcMRI Core will continue for at least one more month. -Please stay tuned for more discussion about this plan. -IBIS in Prime Time! -The IBIS study was mentioned, or at least inaccurately described, in a recent episode of The Good Doctor. - Here is a link to the clip -Many thanks to Lisa and her son for noticing this and providing the clip. Again, best of luck to those IBISes presenting and attending INSAR Down Under! We look forward to the stories once you return. Have a super weekend everyone!!!! Chad -------------- next part -------------- An HTML attachment was scrubbed... URL: From pruettj at wustl.edu Fri May 17 17:59:11 2024 From: pruettj at wustl.edu (Pruett, John) Date: Fri, 17 May 2024 21:59:11 +0000 Subject: [Ace-recruitment] IBIS Network - Week In Review - 5/17/2024 In-Reply-To: <06E67645-7A0E-4649-BC96-42D6C627A168@med.unc.edu> References: <930D128C-CAB7-4A5B-89BC-71F8E17C8170@med.unc.edu> <99824892-1079-44F9-9453-259A87D10171@med.unc.edu> <06E67645-7A0E-4649-BC96-42D6C627A168@med.unc.edu> Message-ID: Thanks, Chad! 53-54 pertains to the Sites I have spoken with individually. Have a good weekend, everyone! -- John From: Ace-recruitment On Behalf Of Chappell, Chad Sent: Friday, May 17, 2024 4:54 PM To: ace-project at bic.mni.mcgill.ca; ace-coordinator at bic.mni.mcgill.ca; ace-behavioral at bic.mni.mcgill.ca; Ace-mri ; Ace-recruitment at bic.mni.mcgill.ca; ace-acquisition at bic.mni.mcgill.ca Subject: [Ace-recruitment] IBIS Network - Week In Review - 5/17/2024 * External Email - Caution * IBIS Week In Review 5/17/2024 IBIS EP -Over Recruitment Requested -While future funding (e.g. renewal, supplement) is not yet determined, some general changes about the EP recruitment have been implemented. -The objective is to now try to enroll and follow a total of 53 to 54 subjects, instead of 50. -BuildClinical out of the Wash U Admin Core and fcMRI Core will continue for at least one more month. -Please stay tuned for more discussion about this plan. -IBIS in Prime Time! -The IBIS study was mentioned, or at least inaccurately described, in a recent episode of The Good Doctor. - Here is a link to the clip -Many thanks to Lisa and her son for noticing this and providing the clip. Again, best of luck to those IBISes presenting and attending INSAR Down Under! We look forward to the stories once you return. Have a super weekend everyone!!!! Chad ________________________________ The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail. -------------- next part -------------- An HTML attachment was scrubbed... URL: From drgray at wustl.edu Mon May 20 11:08:36 2024 From: drgray at wustl.edu (Gray, Daniel) Date: Mon, 20 May 2024 15:08:36 +0000 Subject: [Ace-recruitment] 5/28 Recruitment Call / Extending Recruitment Period Message-ID: Hi all, I'm sending out the reminder for next week's call a little earlier, as I wanted to update you all on some recruitment timetables. For EP, sites have done an INCREDIBLE with recruitment over the last year, though it's evident we'll not be able to hit 250 babies by August (we recognize this has been a tough hill to climb with the attrition that comes from not getting good V6 scan data or losing families for various reasons later in the process). John/Joe discussed this with site PIs last week - they feel like we should continue to shoot for our goal, even if that takes us into the fall. (Seeing some of these families through V24 visits might ultimately be dependent on IBIS receiving supplement/renewal funding, but we think it's wise to continue to ID/enroll these families given our recent progress). So we're asking sites to continue to recruit/screen/enroll through the fall, and where possible, to shoot for 53-54 babies to account for attrition. Given that we now have an extended window of potential V6 visit dates, Dr. Pruett is extending our Build Clinical campaign 1 more month (through 6/21). We will evaluate in a few weeks where sites are with lead generation as to whether to extend another month (so please also track how many potential leads you still have and are outreaching). All of you should have existing BC leads of babies born from March 2024 on - you may/may not have contacted these families to tell them about the study, but please start outreaching these families to see if they are still interested. Target any families with a potential V6 visit up to December. I have a master list of ALL BC leads since we started, so if you need me to re-send any of your site's leads, just let me know. Also, continue to maximize any local recruitment opportunities you have (clinics, EHR/MyChart, etc). For DS, this has been mentioned on Large/BCC calls, but we are following the same recruitment assumptions - continue recruiting past August to hit your site goals with either V6 or V12 entrants. See you all next Tuesday, May 28 from 11:30-12:30 Central. Don't forget to ensure your recruitment ID numbers are up-to-date in the excel file at least one hour before our meeting. Meeting Link: https://wustl-hipaa.zoom.us/j/92135972316 Link to Agenda/Recruitment Workgroup Folder Thanks for everyone's continued efforts. Daniel Gray, MSW Washington University School of Medicine Infant Brain Imaging Study (IBIS) Autism Early Prediction: https://ibis-network.com/infant/ Down Syndrome: www.dsstudies.com ________________________________ The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail. -------------- next part -------------- An HTML attachment was scrubbed... URL: From cchappel at med.unc.edu Fri May 24 17:40:09 2024 From: cchappel at med.unc.edu (Chappell, Chad) Date: Fri, 24 May 2024 21:40:09 +0000 Subject: [Ace-recruitment] IBIS Network - Week In Review - 5/24/2024 In-Reply-To: <06E67645-7A0E-4649-BC96-42D6C627A168@med.unc.edu> References: <930D128C-CAB7-4A5B-89BC-71F8E17C8170@med.unc.edu> <99824892-1079-44F9-9453-259A87D10171@med.unc.edu> <06E67645-7A0E-4649-BC96-42D6C627A168@med.unc.edu> Message-ID: <8D04C396-D623-4225-B580-9CF47FA3441A@med.unc.edu> IBIS Week In Review 5/24/2024 No changes in IBIS this week, but please see the attached pics from INSAR. Many thanks to Meghan and Austin for sending these! IBIS had super strong representation Down Under! Have a wonderful weekend everyone! Chad [f00df410-9769-4502-a16c-40ea7e43db23.jpeg][IMG_8943.jpeg][4dba5085-1c88-42dd-90f5-92ce154468cb.jpeg][4acf4f61-4e4e-4596-84e3-5d5be198cbe7.jpeg] -------------- next part -------------- An HTML attachment was scrubbed... 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Name: 4acf4f61-4e4e-4596-84e3-5d5be198cbe7.jpeg Type: image/jpeg Size: 220173 bytes Desc: 4acf4f61-4e4e-4596-84e3-5d5be198cbe7.jpeg URL: From drgray at wustl.edu Tue May 28 10:49:17 2024 From: drgray at wustl.edu (Gray, Daniel) Date: Tue, 28 May 2024 14:49:17 +0000 Subject: [Ace-recruitment] Recruitment Call Today: 15 Min Delay to Start Message-ID: Hi all, let's start our recruitment call 15 minutes late today (11:45 Central). Natasha has a meeting until 12, and since our calls have been shorter recently, this will hopefully allow her to join in time to participate in the DS recruitment discussion/updates. Thanks, Daniel Daniel Gray, MSW Washington University School of Medicine Infant Brain Imaging Study (IBIS) Autism Early Prediction: https://ibis-network.com/infant/ Down Syndrome: www.dsstudies.com ________________________________ The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail. -------------- next part -------------- An HTML attachment was scrubbed... URL: From cchappel at med.unc.edu Fri May 31 17:47:16 2024 From: cchappel at med.unc.edu (Chappell, Chad) Date: Fri, 31 May 2024 21:47:16 +0000 Subject: [Ace-recruitment] IBIS Network - Week In Review - 5/31/2024 In-Reply-To: <06E67645-7A0E-4649-BC96-42D6C627A168@med.unc.edu> References: <930D128C-CAB7-4A5B-89BC-71F8E17C8170@med.unc.edu> <99824892-1079-44F9-9453-259A87D10171@med.unc.edu> <06E67645-7A0E-4649-BC96-42D6C627A168@med.unc.edu> Message-ID: IBIS Week In Review 5/31/2024 IBIS Executive Committee -Approvals -Jason Wolter has received Eagles funding to support and expand his K award analyses. -Jason Stein has submitted fpr a grant entitled: AD GxE: In vivo and in vitro modeling of gene x environment interactions IBIS Family News -Congratulations to Becca on the birth of her sweet baby boy, Lucas, born 5/15. All are home and doing well! Heartwarming pic attached. Have a wonderful weekend everyone!!!! 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