From cchappel at med.unc.edu Fri Apr 5 17:41:23 2024 From: cchappel at med.unc.edu (Chappell, Chad) Date: Fri, 5 Apr 2024 21:41:23 +0000 Subject: [Ace-recruitment] IBIS Network - Week In Review - 4/5/2024 In-Reply-To: References: <930D128C-CAB7-4A5B-89BC-71F8E17C8170@med.unc.edu> Message-ID: IBIS Week In Review 3/29 & 4/5/2024 IBIS EP We are working on an IRB modification to allow for in person V36 visits, but this is currently not approved so please hold off on administering any in person visits at this time. The V36 telehealth visit is approved and should be administered to all IBIS EP participants. IBIS Diversity Workgroup Please see the attached flyer for the upcoming Professional Development Series Event for students from backgrounds traditionally underrepresented in the field. Please forward this to any students you think may be interested. IBIS Executive Committee Approvals: Jason Wolff - A manuscript proposal building off of work one of Jason's doc students is presenting at Gatlinburg. The paper will examine repetitive and self-injurious papers in school age kids with Down syndrome in comparison to TD, HL-ASD, and HL-Neg. Mark Shen - Use of IBIS 1 and 2 LL- data, UNC site only, to include in a figure of human Angelman MRI data from 1.5-12 years of age. This will be incorporated into a a mouse model paper in the works charting the WM growth and myelination of Angelman syndrome mice. Have a nice weekend everyone! Chad -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: UNC ProfDevSeries.docx Type: application/vnd.openxmlformats-officedocument.wordprocessingml.document Size: 533829 bytes Desc: UNC ProfDevSeries.docx URL: From cchappel at med.unc.edu Fri Apr 12 17:37:03 2024 From: cchappel at med.unc.edu (Chappell, Chad) Date: Fri, 12 Apr 2024 21:37:03 +0000 Subject: [Ace-recruitment] IBIS Network - Week In Review - 4/12/2024 In-Reply-To: References: <930D128C-CAB7-4A5B-89BC-71F8E17C8170@med.unc.edu> Message-ID: <99824892-1079-44F9-9453-259A87D10171@med.unc.edu> IBIS Week In Review 4/12/2024 IBIS Network News Rubal Singla, from Jason Stein?s UNC Lab, has received ASF fellowship funding for the project titled ?Can Brain Size Predict Autism? Building a model system with iPSC-derived cortical organoids?. -Congratulations Rubal!!!! Have a wonderful weekend everyone! Chad -------------- next part -------------- An HTML attachment was scrubbed... URL: From drgray at wustl.edu Wed Apr 17 10:28:41 2024 From: drgray at wustl.edu (Gray, Daniel) Date: Wed, 17 Apr 2024 14:28:41 +0000 Subject: [Ace-recruitment] 4/23 IBIS Recruitment Call In-Reply-To: References: Message-ID: Hi all - A reminder that our recruitment call is next Tuesday, April 23 from 11:30 AM to 12:30 PM Central. Let me know if you have agenda items for discussion. Please be sure to update your site's V6 scheduled/completed PSC IDs on the Infant Enrollment Tracking spreadsheet so that totals will auto-calculate. Meeting Link: https://wustl-hipaa.zoom.us/j/92135972316 Link to Agenda/Recruitment Workgroup Folder Thanks, Daniel Daniel Gray, MSW Washington University School of Medicine Infant Brain Imaging Study (IBIS) Autism Early Prediction: https://ibis-network.com/infant/ Down Syndrome: www.dsstudies.com ________________________________ The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail. ________________________________ The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail. -------------- next part -------------- An HTML attachment was scrubbed... URL: From cchappel at med.unc.edu Fri Apr 26 18:03:13 2024 From: cchappel at med.unc.edu (Chappell, Chad) Date: Fri, 26 Apr 2024 22:03:13 +0000 Subject: [Ace-recruitment] IBIS Network - Week In Review - 4/19&26/2024 In-Reply-To: <99824892-1079-44F9-9453-259A87D10171@med.unc.edu> References: <930D128C-CAB7-4A5B-89BC-71F8E17C8170@med.unc.edu> <99824892-1079-44F9-9453-259A87D10171@med.unc.edu> Message-ID: IBIS Week In Review 4/19&26/2024 IBIS Network News Madison Booth received the Gatlinburg Conference John D. Borkowski Diversity Travel Award for the conference. Congratulations Madison!!! I hear your talk, and the other IBIS talks, went extremely well! IBIS Executive Committee Approvals: Styner/Yoonmi Prediction of Autism Severity Scores from Functional Connectomes. A presentation at UNC psychiatry department?s research day using John's IBIS 1 & 2 fMRI data. Govindaraj/Swanson From infancy to school-age: how do home environment factors impact cognitive development? hoping to extend our previous LENA work by incorporating school age language skills. This will be a dissertation. Girault/ORIGINS We have shared our low-likelihood IBIS1 and IBIS2 neuroimaging data, along with basic demographics and some cognitive behavioral data (Mullen, CBCL) with the ENIGMA ORIGINS workgroup. We have now been asked to additionally share IBQ data for these participants. Mullin/Girault Use of parent neuropsychiatric trait data and analyzing this in relation to infant and school-age cognitive and behavioral features using both IBIS-1/2 (and IBIS-EP data, depending on availability). This will be a dissertation. Pruett Changes approved for the project "6-month Visual/Salience Network Functional Connectivity ?: -We will run aim 1 and aim 2 in IBIS 1 and 2 six-month subjects using the same EXP62 analyses (with substitute, comparable variables ? e.g., Mullen scores in place of Bayley scores). -We would also like to change the following: ?Aim 1?: Among IBIS 1 and 2 six-month subjects, we will use SMI. Volk/Song Ashley Song, junior faculty part of Heather's lab, would like to submit for in internal JHU junior faculty support pilot to build on the environment work we?ve done with IBIS.BIS EP subjects, we will use SMQ instead of SMI. Have an amazing weekend everyone! Chad -------------- next part -------------- An HTML attachment was scrubbed... URL: From drgray at wustl.edu Tue Apr 30 13:45:36 2024 From: drgray at wustl.edu (Gray, Daniel) Date: Tue, 30 Apr 2024 17:45:36 +0000 Subject: [Ace-recruitment] Recent Spark Flier to their Families In-Reply-To: References: Message-ID: Hey all - Tess forwarded this to me. Not sure what the recruitment list serve attachment limit is, so copying some of you directly in case you want to share further within your sites. It's a recent SPARK newsletter they mailed to families and has a couple of nice stories as well as some data on Research Match, which is the registry they allowed us to use for recruitment the last several years. All the best, Daniel ________________________________ The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail. -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: [Untitled].pdf Type: application/pdf Size: 9287249 bytes Desc: [Untitled].pdf URL: