From cchappel at med.unc.edu Fri Sep 2 16:56:34 2022 From: cchappel at med.unc.edu (Chappell, Chad) Date: Fri, 2 Sep 2022 20:56:34 +0000 Subject: [Ace-recruitment] IBIS Network - Week In Review - 9_2_2022 In-Reply-To: References: <10065D5B-23F4-4045-966C-FF86F2BD21AD@med.unc.edu> <9F4BE23C-5209-4BC5-8069-BA8B84C97DFE@med.unc.edu>

<4E93804D-2D0E-4066-B581-CDF5F22C880D@med.unc.edu> <8E7F3D19-F176-4E0C-A9CB-1D4C3DA17256@med.unc.edu>

<7D43D0B7-55E8-428F-9211-54E8BDDF6939@med.unc.edu> Message-ID: IBIS Week In Review 9/2/22 IBIS-DS -sIRB renewed at WUStL -Renewal Docs and consents to be distributed soon Network -Week In Review archive through August 2022 has been uploaded to the Document Repository > IBIS Administrative Documents Wishing a wonderful long holiday weekend to each and every one of you IBISes!!!! -------------- next part -------------- An HTML attachment was scrubbed... URL: From cchappel at med.unc.edu Fri Sep 9 13:00:20 2022 From: cchappel at med.unc.edu (Chappell, Chad) Date: Fri, 9 Sep 2022 17:00:20 +0000 Subject: [Ace-recruitment] IBIS Network - Week In Review - 9_8_2022 In-Reply-To: References: <10065D5B-23F4-4045-966C-FF86F2BD21AD@med.unc.edu> <9F4BE23C-5209-4BC5-8069-BA8B84C97DFE@med.unc.edu>

<4E93804D-2D0E-4066-B581-CDF5F22C880D@med.unc.edu> <8E7F3D19-F176-4E0C-A9CB-1D4C3DA17256@med.unc.edu>

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Message-ID: IBIS Week In Review 9/2/22 IBIS ADOL ??????Notice Of Award was received ??????NIH release ??????Other IBIS specific press releases are being created and will be available for distribution soon Network ??????Dea Garic (UNC) received an NIH K01 award! ??????Looking a CFS dynamics in DS compared to HR+ and - ??????Congratulations Dea!!!! ________________________________ From: ace-recruitment-bounces at bic.mni.mcgill.ca on behalf of Chappell, Chad Sent: Friday, September 2, 2022 4:56 PM To: ace-project at bic.mni.mcgill.ca ; ace-coordinator at bic.mni.mcgill.ca ; ace-behavioral at bic.mni.mcgill.ca ; Ace-mri ; Ace-recruitment at bic.mni.mcgill.ca ; ace-acquisition at bic.mni.mcgill.ca Subject: [Ace-recruitment] IBIS Network - Week In Review - 9_2_2022 IBIS Week In Review 9/2/22 IBIS-DS -sIRB renewed at WUStL -Renewal Docs and consents to be distributed soon Network -Week In Review archive through August 2022 has been uploaded to the Document Repository > IBIS Administrative Documents Wishing a wonderful long holiday weekend to each and every one of you IBISes!!!! -------------- next part -------------- An HTML attachment was scrubbed... URL: From drgray at wustl.edu Wed Sep 14 21:48:06 2022 From: drgray at wustl.edu (Gray, Daniel) Date: Thu, 15 Sep 2022 01:48:06 +0000 Subject: [Ace-recruitment] 9/20 IBIS Recruitment Call In-Reply-To: References: Message-ID: Hi all, Our next recruitment call is Tuesday, September 20 from 11:30 AM to 12:30 PM Central. Please update the agenda with your site's recruitment totals. Let me know if you have any particular agenda items. I'm also interested to hear how sites are doing with their build clinical referrals (total #'s and how many TSIs (and their results) have been done). As Kelly mentioned on the large group call last week, we really need to ramp up our DS numbers, so I'm also interested in hearing what sites are doing on that front (and hopefully sites are canvassing the community beyond their hospital affiliate). Meeting Link: https://wustl-hipaa.zoom.us/j/92135972316 Link to Agenda/Recruitment Workgroup Folder Thanks, Daniel Daniel Gray, MSW Recruitment/Marketing Manager Washington University School of Medicine Infant Brain Imaging Study (IBIS) 1-888-845-6786 Autism Early Prediction: https://ibis-network.com/infant/ Down Syndrome: www.dsstudies.com ________________________________ The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail. ________________________________ The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail. ________________________________ The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail. -------------- next part -------------- An HTML attachment was scrubbed... URL: From cchappel at med.unc.edu Fri Sep 16 17:12:46 2022 From: cchappel at med.unc.edu (Chappell, Chad) Date: Fri, 16 Sep 2022 21:12:46 +0000 Subject: [Ace-recruitment] IBIS Network - Week In Review - 9_16_2022 In-Reply-To: References: <10065D5B-23F4-4045-966C-FF86F2BD21AD@med.unc.edu> <9F4BE23C-5209-4BC5-8069-BA8B84C97DFE@med.unc.edu>

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Message-ID: <8FA0C240-5168-47EF-9C1C-83FA39262DCE@med.unc.edu> IBIS Week In Review 9/16/22 Network ?????-Aurora Washington has joined the IBIS Network as a UNC Post Doc. -For her IBIS involvement, Aurora will work with Kate McDuffie at UW conducting qualitative research to study ethical issues underlying parent decision making about presymptomatic screening. -Welcome Aurora!!! On Sep 9, 2022, at 1:00 PM, Chappell, Chad > wrote: IBIS Week In Review 9/9/22 IBIS ADOL ??????Notice Of Award was received ??????NIH release ??????Other IBIS specific press releases are being created and will be available for distribution soon Network ??????Dea Garic (UNC) received an NIH K01 award! ??????Looking a CFS dynamics in DS compared to HR+ and - ??????Congratulations Dea!!!! ________________________________ From: ace-recruitment-bounces at bic.mni.mcgill.ca

> on behalf of Chappell, Chad > Sent: Friday, September 2, 2022 4:56 PM To: ace-project at bic.mni.mcgill.ca

>; ace-coordinator at bic.mni.mcgill.ca

>; ace-behavioral at bic.mni.mcgill.ca

>; Ace-mri >; Ace-recruitment at bic.mni.mcgill.ca

>; ace-acquisition at bic.mni.mcgill.ca

<4E93804D-2D0E-4066-B581-CDF5F22C880D@med.unc.edu> <8E7F3D19-F176-4E0C-A9CB-1D4C3DA17256@med.unc.edu>

<7D43D0B7-55E8-428F-9211-54E8BDDF6939@med.unc.edu>

<8FA0C240-5168-47EF-9C1C-83FA39262DCE@med.unc.edu> Message-ID: IBIS Week In Review 9/23/22 Network -ADOL funding: sub-awards going out soon -will have no gap in funding between SA and ADOL (8/1/22 start date) Happy Fall, All! Enjoy the weekend! Chad On Sep 16, 2022, at 5:12 PM, Chappell, Chad > wrote: IBIS Week In Review 9/16/22 Network ?????-Aurora Washington has joined the IBIS Network as a UNC Post Doc. -For her IBIS involvement, Aurora will work with Kate McDuffie at UW conducting qualitative research to study ethical issues underlying parent decision making about presymptomatic screening. -Welcome Aurora!!! On Sep 9, 2022, at 1:00 PM, Chappell, Chad > wrote: IBIS Week In Review 9/9/22 IBIS ADOL ??????Notice Of Award was received ??????NIH release ??????Other IBIS specific press releases are being created and will be available for distribution soon Network ??????Dea Garic (UNC) received an NIH K01 award! ??????Looking a CFS dynamics in DS compared to HR+ and - ??????Congratulations Dea!!!! ________________________________ From: ace-recruitment-bounces at bic.mni.mcgill.ca

> on behalf of Chappell, Chad > Sent: Friday, September 2, 2022 4:56 PM To: ace-project at bic.mni.mcgill.ca

>; ace-coordinator at bic.mni.mcgill.ca

>; ace-behavioral at bic.mni.mcgill.ca

>; Ace-mri >; Ace-recruitment at bic.mni.mcgill.ca

>; ace-acquisition at bic.mni.mcgill.ca

> Subject: [Ace-recruitment] IBIS Network - Week In Review - 9_2_2022 IBIS Week In Review 9/2/22 IBIS-DS -sIRB renewed at WUStL -Renewal Docs and consents to be distributed soon Network -Week In Review archive through August 2022 has been uploaded to the Document Repository > IBIS Administrative Documents Wishing a wonderful long holiday weekend to each and every one of you IBISes!!!! _______________________________________________ Ace-recruitment mailing list Ace-recruitment at bic.mni.mcgill.ca https://mailman.bic.mni.mcgill.ca/mailman/listinfo/ace-recruitment _______________________________________________ Ace-acquisition mailing list Ace-acquisition at bic.mni.mcgill.ca https://mailman.bic.mni.mcgill.ca/mailman/listinfo/ace-acquisition -------------- next part -------------- An HTML attachment was scrubbed... URL: From drgray at wustl.edu Mon Sep 26 08:57:39 2022 From: drgray at wustl.edu (Gray, Daniel) Date: Mon, 26 Sep 2022 12:57:39 +0000 Subject: [Ace-recruitment] Recruitment - New study for Black/AA caregivers In-Reply-To: References: Message-ID: Hi all - as discussed in our recruitment call, Kelly Caravella at UNC has a study to understand the experience of Black/African American caregivers and participating in autism research (no age restrictions). The attached flier/recruitment language below are IRB approved. Feel free to share this with families who may be eligible. _________________________________________________________________________________________ Thank you for expressing interest in learning more about our research studies. At this time, we are recruiting participants for a study that aims to gather the opinions of Black families about participating in autism research and hopes to amplify and accurately represent the voices and experiences of Black families of children with autism. In order to enroll, participants must be a Black/African American parent/caregiver of at least one Black child with autism spectrum disorder. Participation will involve a phone interview that will take ~1 hour, no travel is required. We will ask questions about your family, your child's autism diagnosis, and your opinions about research. You will receive $50 in compensation after completing the study. If you are interested in participating, please follow this link to complete a brief survey to confirm your eligibility. https://unc.az1.qualtrics.com/jfe/form/SV_bpVmh9d2Dc5t262 If you have any questions, feel free to contact Dr. Kelly Caravella at kelly_caravella at med.unc.edu for more information. We are seeking participants for an ongoing research study. The study aims to gather the opinions of Black families about participating in autism research and hopes to amplify and accurately represent the voices and experiences of Black families of children with autism. Who can participate? In order to enroll, participants must be a Black/African American parent/caregiver of at least one Black child with autism spectrum disorder. What does participation include? Participation will involve a phone interview that will take ~1 hour, no travel is required. We will ask questions about your family, your child's autism diagnosis, and your opinions about research. Will compensation be provided? You will receive $50 in compensation after completing the study. If you are interested in participating, please follow this link to complete a brief survey to confirm your eligibility. https://unc.az1.qualtrics.com/jfe/form/SV_bpVmh9d2Dc5t262 If you have any questions, feel free to contact Dr. Kelly Caravella at kelly_caravella at med.unc.edu for more information. Kelly Caravella, Ph.D. (she/her) Postdoctoral Fellow Licensed Psychologist (NC #5819) Carolina Institute for Developmental Disabilities (CIDD) University of North Carolina at Chapel Hill CONFIDENTIALITY NOTICE: The information in this email is intended only for the use of the individual or entity to which it is addressed and may contain information that is privileged, confidential and/or exempt from disclosure under applicable law. If you are not the intended recipient or an authorized representative of the intended recipient, you are hereby notified that any review, dissemination or copying of this email and its attachments, if any, or the information contained herein is prohibited. If you have received this email in error, please immediately notify the sender by return email and delete this email from your system. Thank you. ________________________________ The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail. -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: Barriers Project - Recruitment Flyer_7.21.227_NEW.pdf Type: application/pdf Size: 801507 bytes Desc: Barriers Project - Recruitment Flyer_7.21.227_NEW.pdf URL: From cchappel at med.unc.edu Fri Sep 30 17:22:51 2022 From: cchappel at med.unc.edu (Chappell, Chad) Date: Fri, 30 Sep 2022 21:22:51 +0000 Subject: [Ace-recruitment] IBIS Network - Week In Review - 9_30_2022 In-Reply-To: References: <10065D5B-23F4-4045-966C-FF86F2BD21AD@med.unc.edu> <9F4BE23C-5209-4BC5-8069-BA8B84C97DFE@med.unc.edu>

<4E93804D-2D0E-4066-B581-CDF5F22C880D@med.unc.edu> <8E7F3D19-F176-4E0C-A9CB-1D4C3DA17256@med.unc.edu>

<7D43D0B7-55E8-428F-9211-54E8BDDF6939@med.unc.edu>

<8FA0C240-5168-47EF-9C1C-83FA39262DCE@med.unc.edu> Message-ID: <621A5E4A-9913-4FE1-A4A7-C7AC7AACDBBA@med.unc.edu> IBIS Week In Review 9/30/22 Network No changes Too Nice Not To Share Broadly A student of Jason Wolff's is working on a project with school age data and was thinking of ways to include/highlight our participants' strengths in some way. One nice variable they found was the "best thing about your child" question on the CBCL. Jason put together a quick word cloud with the data -- which were sweet to read through -- and thought he'd share it. [IBIS CBCL best things word cloud.png] On Sep 23, 2022, at 5:45 PM, Chappell, Chad > wrote: IBIS Week In Review 9/23/22 Network -ADOL funding: sub-awards going out soon -will have no gap in funding between SA and ADOL (8/1/22 start date) Happy Fall, All! Enjoy the weekend! Chad On Sep 16, 2022, at 5:12 PM, Chappell, Chad > wrote: IBIS Week In Review 9/16/22 Network ?????-Aurora Washington has joined the IBIS Network as a UNC Post Doc. -For her IBIS involvement, Aurora will work with Kate McDuffie at UW conducting qualitative research to study ethical issues underlying parent decision making about presymptomatic screening. -Welcome Aurora!!! On Sep 9, 2022, at 1:00 PM, Chappell, Chad > wrote: IBIS Week In Review 9/9/22 IBIS ADOL ??????Notice Of Award was received ??????NIH release ??????Other IBIS specific press releases are being created and will be available for distribution soon Network ??????Dea Garic (UNC) received an NIH K01 award! ??????Looking a CFS dynamics in DS compared to HR+ and - ??????Congratulations Dea!!!! ________________________________ From: ace-recruitment-bounces at bic.mni.mcgill.ca

> on behalf of Chappell, Chad > Sent: Friday, September 2, 2022 4:56 PM To: ace-project at bic.mni.mcgill.ca

>; ace-coordinator at bic.mni.mcgill.ca

>; ace-behavioral at bic.mni.mcgill.ca

>; Ace-mri >; Ace-recruitment at bic.mni.mcgill.ca

>; ace-acquisition at bic.mni.mcgill.ca