From drgray at wustl.edu Wed Jan 12 09:21:56 2022 From: drgray at wustl.edu (Gray, Daniel) Date: Wed, 12 Jan 2022 14:21:56 +0000 Subject: [Ace-recruitment] 1/18 IBIS Recruitment Meeting Message-ID: Hi all ? just a reminder that our next monthly recruitment call is Tuesday, January 18 from 11:30-12:30 Central. Please update the agenda with your site?s recruitment totals as well as the log. Let me know if you have any particular agenda items to discuss. I look forward to catching up with you all on how recruitment is going. Meeting Link: https://wustl-hipaa.zoom.us/j/92135972316 Link to Agenda/Recruitment Workgroup Folder Thanks, Daniel Daniel Gray, MSW Recruitment/Markerting Manager Washington University School of Medicine Infant Brain Imaging Study (IBIS) 1-888-845-6786 Autism Early Prediction: www.autismbabybrain.com Down Syndrome: www.dsstudies.com ________________________________ The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail. ________________________________ The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail. -------------- next part -------------- An HTML attachment was scrubbed... URL: From cchappel at med.unc.edu Fri Jan 14 16:26:25 2022 From: cchappel at med.unc.edu (Chappell, Chad) Date: Fri, 14 Jan 2022 21:26:25 +0000 Subject: [Ace-recruitment] IBIS Network - Week In Review - 1_14_2022 Message-ID: Hello All! See below for the first of many to come 'IBIS Network - Week In Review' emails. The purpose of these emails each week will be to disseminate across all list-serves any IBIS major decisions and changes to the protocol or functioning of the Network. These messages will be sent to every email address that is listed in an IBIS list-serve. The content of these emails will be archived monthly, and searchable, in a running document saved in the LORIS Document Repository. Only changes that are fully approved to be implemented will be included in these emails. The content of these emails will come from all of our various Network calls, minutes, and messages. Some weeks there may be many things listed, some weeks not as much. Please feel free to let me know if you have any suggestions for changes in how these emails should look, or items you would like to be listed going forward. Also, this should not happen, but if a decision is ever missed, please reach out to me and a revision will be sent. We want this to be, and really hope that it is, a super useful thing for everyone! Chad *********** IBIS Network - Week In Review January 14, 2022 -ELSI Interviews (SA and EP/Behavioral): ELSI and iPSC interviews have been discontinued. No more referrals are needed for Kate at UW. -EP IRB - Renewal approved 1/14/2022: No modifications -Network Meeting: There will not be an IBIS Spring Meeting. Hoping for Fall 2022. -Infant Scans (EP and DS/MRI): Two Siemens sandbags are now required to be used during scans to reduce vibration. See image below for suggested orientation. [cid:0DED6E5C-E9F7-45BC-907C-C9096E00E7AE] -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: Screen Shot 2022-01-14 at 1.08.05 PM.png Type: image/png Size: 58740 bytes Desc: Screen Shot 2022-01-14 at 1.08.05 PM.png URL: From cchappel at med.unc.edu Fri Jan 21 16:20:01 2022 From: cchappel at med.unc.edu (Chappell, Chad) Date: Fri, 21 Jan 2022 21:20:01 +0000 Subject: [Ace-recruitment] [Ace-mri] IBIS Network - Week In Review - 1_14_2022 In-Reply-To: References: Message-ID: <420AF40E-A6B7-405A-B7D5-8C664EFD9BD2@med.unc.edu> IBIS Network - Week In Review January 21, 2022 -No changes this week Prior weeks this month: IBIS Network - Week In Review January 14, 2022 -ELSI Interviews (SA and EP/Behavioral): ELSI and iPSC interviews have been discontinued. No more referrals are needed for Kate at UW. -EP IRB - Renewal approved 1/14/2022: No modifications -Network Meeting: There will not be an IBIS Spring Meeting. Hoping for Fall 2022. -Infant Scans (EP and DS/MRI): Two Siemens sandbags are now required to be used during scans to reduce vibration. See image below for suggested orientation. _______________________________________________ Ace-mri mailing list Ace-mri at bic.mni.mcgill.ca https://mailman.bic.mni.mcgill.ca/mailman/listinfo/ace-mri -------------- next part -------------- An HTML attachment was scrubbed... URL: From cchappel at med.unc.edu Fri Jan 28 17:04:13 2022 From: cchappel at med.unc.edu (Chappell, Chad) Date: Fri, 28 Jan 2022 22:04:13 +0000 Subject: [Ace-recruitment] [Ace-mri] IBIS Network - Week In Review - 1_14_2022 In-Reply-To: <420AF40E-A6B7-405A-B7D5-8C664EFD9BD2@med.unc.edu> References: <420AF40E-A6B7-405A-B7D5-8C664EFD9BD2@med.unc.edu> Message-ID: <1984CD5F-3505-4B08-A00D-29B5E330F599@med.unc.edu> IBIS Network - Week In Review January 28, 2022 -Change in Inclusion Criteria for IBIS-EP and DS: The IBIS Executive Committee voted to change the inclusion criteria for IBIS EP and Infant DS to state that at least one parent who is attending assessments (or completing phone interviews) must have self-reported proficiency in English AND that the child will have sufficient language exposure to participate in assessments administered in English. All parents in the study will be asked English proficiency questions. A small group will (1) craft language proficiency questions, (2) create a short list of language exposure questionnaires to be presented to the BBC for vote, (3) recommend a minimum percentage of English language exposure. -Clarification of IBIS-SA Inclusion and Recommendation for Authors The IBIS Executive Committee voted to not exclude any IBIS School Age families based on languages spoken in the home. A review of the IBIS School Age IRB indicated that there is not inclusion/exclusion criteria around language spoken in the home. A note to authors of work using IBIS 1, 2, and School Age data- since we did not ask families to report what languages were spoken in the home we can not definitely say that English was the primary language. The IBIS Executive Committee recommended that a language exposure and language use measure be added to the IBIS School Age and IBIS Adolescent study (if funded). A small group will work on creating a short list of language exposure/use questionnaires to be presented to the BBC for vote. -Sleep Study: UNC and Wash U have obtained IRB approval and have started to see children for the sleep study. -Paper Accepted for Publication: Mark Shen, et al.: Subcortical Brain Development in Autism and Fragile X Syndrome: Evidence for Dynamic, Age- and Disorder-Specific Trajectories in Infancy, The American Journal of Psychiatry -The IBIS Executive Committee has approved the following Proposals: BBL_EXP04_CSBS- a project following up on Shruthi?s paper on the development of social communication skills using the CSBS which is almost ready for submission. We aim to use the LR-Neg sample to look for white matter neural correlates of social communication. The project is being led by an undergraduate honors student in Meghan Swanson's lab with close supervision by Meghan and Shruthi. BBL_EXP05_LENA_sMRI- a project following up on a current paper that is in prep that found significant associations between caregiver speech using LENA and white matter fiber in the arcuate. This new project is being led by Kat, a MS student in Meghan Swanson's lab, who is also co-leading the white matter project. The initial goal is to take a hypothesis driven approach and see if we find significant association in surface area/cortical thickness regions that correspond to the areas of the brain where we see signal in white matter. Support for a K Award Submission by Justin Wolter, a basic neuroscience post doc at UNC working with Jason Stein and Mark Zylka. Justin is submitting a K Award to work with Jason and Mark to examine how common genetic variation shapes the severity of hyperproliferation phenotypes caused by mutations in PTEN. Prior weeks this month: IBIS Network - Week In Review January 21, 2022 -No changes this week IBIS Network - Week In Review January 14, 2022 -ELSI Interviews (SA and EP/Behavioral): ELSI and iPSC interviews have been discontinued. No more referrals are needed for Kate at UW. -EP IRB - Renewal approved 1/14/2022: No modifications -Network Meeting: There will not be an IBIS Spring Meeting. Hoping for Fall 2022. -Infant Scans (EP and DS/MRI): Two Siemens sandbags are now required to be used during scans to reduce vibration. See image below for suggested orientation. _______________________________________________ Ace-mri mailing list Ace-mri at bic.mni.mcgill.ca https://mailman.bic.mni.mcgill.ca/mailman/listinfo/ace-mri -------------- next part -------------- An HTML attachment was scrubbed... URL: