[Ace-recruitment] IBIS Network - Week In Review - 2_11_2022

[Chappell, Chad]

IBIS Network - Week In Review
February 18, 2022

-IBIS-EP IRB Modification Approval:
-Added CHLA as an IBIS-EP site
-Updated the consent forms to include a new kit recovery policy for LENA
-New consents are in each site’s folder in the Document Repository
-UTD will reach out to the sites for information regarding the policy change




On Feb 14, 2022, at 4:19 PM, Chappell, Chad <cchappel at med.unc.edu<mailto:cchappel at med.unc.edu>> wrote:

IBIS Network - Week In Review
February 11, 2022

-Guidelines have been adopted for terminology to be used in IBIS presentations/publications (February 2022)

-Given concerns raised by some in the autism community the IBIS Network has developed guidelines regarding use of the term ‘risk’ in IBIS presentations/publications.  In the past we have used the terms ‘high risk (HR)’ and ‘low risk (LR)’ to refer to infants who, respectively, have or do not have an older sibling with ASD.  With this new guideline, we are now asking members of the Network to replace the term ‘risk’ with ‘likelihood’ and to qualify the term ‘likelihood’ with either the terms ‘high and low’ or ‘higher and lower’, based on whichever fits best with the text.  For example, sometimes the term ‘higher’ can be confusing without additional text, as it leaves the reader wondering ‘higher than what ?’.  Similarly, some might be confused by the term ‘high’ when the intention is that this means higher than population risk and does not imply that a child is destined to develop autism.  These are some of the pro and con arguments that have been presented in support of one or the other approach.  Note: use of a methods-based definition e.g., family history positive, in place of or in addition to using high/er and low/er likelihood, is acceptable.

-Executive Committee Approvals

-Paper proposal: Gerig; Longitudinally-consistent Contrastive Self-supervision for One-shot Segmentation

-Paper proposal: Elison/Carolyn Lasch; characterizing longitudinal associations between temperament, higher-order RRBs, and internalizing



On Feb 4, 2022, at 4:54 PM, Chappell, Chad <cchappel at med.unc.edu<mailto:cchappel at med.unc.edu>> wrote:

IBIS Network - Week In Review
February 4, 2022


-IBIS-SA sIRB Modification Approval:

-University of Texas - Dallas was added to the IBIS-SA sIRB as an analysis site

-The Tasso device approved for use for iPSC blood collection
***2 consents updated for all data collection sites:
-iPSC Parent and iPSC Assent have been uploaded to the Document Repository
-IBIS-SA IRB Documents>IBIS-SA Current Consents>All Sites Consents

- DSSA data sharing with Cincinnati (Anna Esbensen) was approved

-IBIS Week In Review Archive for January has been uploaded to the Document Repository (under ‘IBIS Administrative Documents > IBIS_WeekInReview_January_2022’)
-This document is searchable and will be updated each month

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