From cchappel at med.unc.edu Fri Feb 4 16:54:31 2022 From: cchappel at med.unc.edu (Chappell, Chad) Date: Fri, 4 Feb 2022 21:54:31 +0000 Subject: [Ace-recruitment] IBIS Network - Week In Review - 2_4_2022 In-Reply-To: <1984CD5F-3505-4B08-A00D-29B5E330F599@med.unc.edu> References: <AF416568-4C60-482F-99B0-12E408E9D85D@med.unc.edu> <420AF40E-A6B7-405A-B7D5-8C664EFD9BD2@med.unc.edu> <1984CD5F-3505-4B08-A00D-29B5E330F599@med.unc.edu> Message-ID: <573C67E0-4247-4178-B88A-515E5FA04712@med.unc.edu> IBIS Network - Week In Review February 4, 2022 -IBIS-SA sIRB Modification Approval: -University of Texas - Dallas was added to the IBIS-SA sIRB as an analysis site -The Tasso device approved for use for iPSC blood collection ***2 consents updated for all data collection sites: -iPSC Parent and iPSC Assent have been uploaded to the Document Repository -IBIS-SA IRB Documents>IBIS-SA Current Consents>All Sites Consents - DSSA data sharing with Cincinnati (Anna Esbensen) was approved -IBIS Week In Review Archive for January has been uploaded to the Document Repository (under ?IBIS Administrative Documents > IBIS_WeekInReview_January_2022?) -This document is searchable and will be updated each month -------------- next part -------------- An HTML attachment was scrubbed... URL: <http://mailman.bic.mni.mcgill.ca/pipermail/ace-recruitment/attachments/20220204/d4465538/attachment.html> From drgray at wustl.edu Thu Feb 10 11:07:56 2022 From: drgray at wustl.edu (Gray, Daniel) Date: Thu, 10 Feb 2022 16:07:56 +0000 Subject: [Ace-recruitment] 2/15 IBIS Recruitment Meeting Message-ID: <CO6PR02MB76010103BEC5E342C1257E6FD22F9@CO6PR02MB7601.namprd02.prod.outlook.com> Hi all ? just a reminder that our next monthly recruitment call is Tuesday, February 15 from 11:30-12:30 Central. Please update the agenda with your site?s recruitment totals as well as the log. Let me know if you have any particular agenda items to discuss. I look forward to catching up with you all on how recruitment is going. Meeting Link: https://wustl-hipaa.zoom.us/j/92135972316 Link to Agenda/Recruitment Workgroup Folder<https://drive.google.com/drive/folders/1NnySlzSvCNIldopJd4vLKJAfbc1H-uzt?usp=sharing> Thanks, Daniel Daniel Gray, MSW Recruitment/Markerting Manager Washington University School of Medicine Infant Brain Imaging Study (IBIS) 1-888-845-6786 Autism Early Prediction: www.autismbabybrain.com<http://www.autismbabybrain.com/> Down Syndrome: www.dsstudies.com<http://www.dsstudies.com/> ________________________________ The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail. ________________________________ The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail. -------------- next part -------------- An HTML attachment was scrubbed... URL: <http://mailman.bic.mni.mcgill.ca/pipermail/ace-recruitment/attachments/20220210/41495cb5/attachment.html> From drgray at wustl.edu Mon Feb 14 11:04:16 2022 From: drgray at wustl.edu (Gray, Daniel) Date: Mon, 14 Feb 2022 16:04:16 +0000 Subject: [Ace-recruitment] 2/15 IBIS Recruitment Meeting In-Reply-To: <CO6PR02MB76010103BEC5E342C1257E6FD22F9@CO6PR02MB7601.namprd02.prod.outlook.com> References: <CO6PR02MB76010103BEC5E342C1257E6FD22F9@CO6PR02MB7601.namprd02.prod.outlook.com> Message-ID: <SA2PR02MB7612DF6984F80131135956B8D2339@SA2PR02MB7612.namprd02.prod.outlook.com> Heads up for tomorrow -- Juhi has some great news that SPARK is going to allow a new canvassing of families. Since she has to take care of a clinical case tomorrow, we?ll tackle SPARK first on the agenda -- she?ll have some questions/discussion for each site to start off the meeting. Daniel From: Gray, Daniel Sent: Thursday, February 10, 2022 11:08 AM To: 'Ace-recruitment at bic.mni.mcgill.ca' <Ace-recruitment at bic.mni.mcgill.ca> Subject: 2/15 IBIS Recruitment Meeting Hi all ? just a reminder that our next monthly recruitment call is Tuesday, February 15 from 11:30-12:30 Central. Please update the agenda with your site?s recruitment totals as well as the log. Let me know if you have any particular agenda items to discuss. I look forward to catching up with you all on how recruitment is going. Meeting Link: https://wustl-hipaa.zoom.us/j/92135972316 Link to Agenda/Recruitment Workgroup Folder<https://drive.google.com/drive/folders/1NnySlzSvCNIldopJd4vLKJAfbc1H-uzt?usp=sharing> Thanks, Daniel Daniel Gray, MSW Recruitment/Markerting Manager Washington University School of Medicine Infant Brain Imaging Study (IBIS) 1-888-845-6786 Autism Early Prediction: www.autismbabybrain.com<http://www.autismbabybrain.com/> Down Syndrome: www.dsstudies.com<http://www.dsstudies.com/> ________________________________ The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail. ________________________________ The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail. -------------- next part -------------- An HTML attachment was scrubbed... URL: <http://mailman.bic.mni.mcgill.ca/pipermail/ace-recruitment/attachments/20220214/dad8c132/attachment.html> From cchappel at med.unc.edu Mon Feb 14 16:19:23 2022 From: cchappel at med.unc.edu (Chappell, Chad) Date: Mon, 14 Feb 2022 21:19:23 +0000 Subject: [Ace-recruitment] IBIS Network - Week In Review - 2_11_2022 In-Reply-To: <573C67E0-4247-4178-B88A-515E5FA04712@med.unc.edu> References: <AF416568-4C60-482F-99B0-12E408E9D85D@med.unc.edu> <420AF40E-A6B7-405A-B7D5-8C664EFD9BD2@med.unc.edu> <1984CD5F-3505-4B08-A00D-29B5E330F599@med.unc.edu> <573C67E0-4247-4178-B88A-515E5FA04712@med.unc.edu> Message-ID: <E713403A-A25C-484E-8C3C-B3673D4AB8C0@med.unc.edu> IBIS Network - Week In Review February 11, 2022 -Guidelines have been adopted for terminology to be used in IBIS presentations/publications (February 2022) -Given concerns raised by some in the autism community the IBIS Network has developed guidelines regarding use of the term ?risk? in IBIS presentations/publications. In the past we have used the terms ?high risk (HR)? and ?low risk (LR)? to refer to infants who, respectively, have or do not have an older sibling with ASD. With this new guideline, we are now asking members of the Network to replace the term ?risk? with ?likelihood? and to qualify the term ?likelihood? with either the terms ?high and low? or ?higher and lower?, based on whichever fits best with the text. For example, sometimes the term ?higher? can be confusing without additional text, as it leaves the reader wondering ?higher than what ??. Similarly, some might be confused by the term ?high? when the intention is that this means higher than population risk and does not imply that a child is destined to develop autism. These are some of the pro and con arguments that have been presented in support of one or the other approach. Note: use of a methods-based definition e.g., family history positive, in place of or in addition to using high/er and low/er likelihood, is acceptable. -Executive Committee Approvals -Paper proposal: Gerig; Longitudinally-consistent Contrastive Self-supervision for One-shot Segmentation -Paper proposal: Elison/Carolyn Lasch; characterizing longitudinal associations between temperament, higher-order RRBs, and internalizing On Feb 4, 2022, at 4:54 PM, Chappell, Chad <cchappel at med.unc.edu<mailto:cchappel at med.unc.edu>> wrote: IBIS Network - Week In Review February 4, 2022 -IBIS-SA sIRB Modification Approval: -University of Texas - Dallas was added to the IBIS-SA sIRB as an analysis site -The Tasso device approved for use for iPSC blood collection ***2 consents updated for all data collection sites: -iPSC Parent and iPSC Assent have been uploaded to the Document Repository -IBIS-SA IRB Documents>IBIS-SA Current Consents>All Sites Consents - DSSA data sharing with Cincinnati (Anna Esbensen) was approved -IBIS Week In Review Archive for January has been uploaded to the Document Repository (under ?IBIS Administrative Documents > IBIS_WeekInReview_January_2022?) -This document is searchable and will be updated each month _______________________________________________ Ace-recruitment mailing list Ace-recruitment at bic.mni.mcgill.ca<mailto:Ace-recruitment at bic.mni.mcgill.ca> https://mailman.bic.mni.mcgill.ca/mailman/listinfo/ace-recruitment -------------- next part -------------- An HTML attachment was scrubbed... URL: <http://mailman.bic.mni.mcgill.ca/pipermail/ace-recruitment/attachments/20220214/08ffedda/attachment.html> From drgray at wustl.edu Tue Feb 15 14:26:19 2022 From: drgray at wustl.edu (Gray, Daniel) Date: Tue, 15 Feb 2022 19:26:19 +0000 Subject: [Ace-recruitment] Suggested TSI Pre-screener Questions Message-ID: <SA2PR02MB761298C088730AC1F15EA580D2349@SA2PR02MB7612.namprd02.prod.outlook.com> Hi all, thanks for a wonderful/productive recruitment call today. So many exciting things happening... As discussed, we are going to explore the feasibility of a TSI pre-screener for families to complete online. Please send me and Lisa comments/thoughts on the 3-7 questions that tend to have the highest likelihood of screening people out (and specify whether appropriate to EP, DS, or both). Feel free to review today's agenda/notes if you missed anything. Daniel Gray, MSW Recruitment/Marketing Manager Washington University School of Medicine Infant Brain Imaging Study (IBIS) 1-888-845-6786 Autism Early Prediction: https://ibis-network.com/infant/ Down Syndrome: www.dsstudies.com<http://www.dsstudies.com/> ________________________________ The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail. -------------- next part -------------- An HTML attachment was scrubbed... URL: <http://mailman.bic.mni.mcgill.ca/pipermail/ace-recruitment/attachments/20220215/5d00f25f/attachment.html> From cchappel at med.unc.edu Fri Feb 18 16:37:38 2022 From: cchappel at med.unc.edu (Chappell, Chad) Date: Fri, 18 Feb 2022 21:37:38 +0000 Subject: [Ace-recruitment] IBIS Network - Week In Review - 2_11_2022 In-Reply-To: <E713403A-A25C-484E-8C3C-B3673D4AB8C0@med.unc.edu> References: <AF416568-4C60-482F-99B0-12E408E9D85D@med.unc.edu> <420AF40E-A6B7-405A-B7D5-8C664EFD9BD2@med.unc.edu> <1984CD5F-3505-4B08-A00D-29B5E330F599@med.unc.edu> <573C67E0-4247-4178-B88A-515E5FA04712@med.unc.edu> <E713403A-A25C-484E-8C3C-B3673D4AB8C0@med.unc.edu> Message-ID: <EC7C1432-9126-4A82-A70C-BBA58D7FDFE3@med.unc.edu> IBIS Network - Week In Review February 18, 2022 -IBIS-EP IRB Modification Approval: -Added CHLA as an IBIS-EP site -Updated the consent forms to include a new kit recovery policy for LENA -New consents are in each site?s folder in the Document Repository -UTD will reach out to the sites for information regarding the policy change On Feb 14, 2022, at 4:19 PM, Chappell, Chad <cchappel at med.unc.edu<mailto:cchappel at med.unc.edu>> wrote: IBIS Network - Week In Review February 11, 2022 -Guidelines have been adopted for terminology to be used in IBIS presentations/publications (February 2022) -Given concerns raised by some in the autism community the IBIS Network has developed guidelines regarding use of the term ?risk? in IBIS presentations/publications. In the past we have used the terms ?high risk (HR)? and ?low risk (LR)? to refer to infants who, respectively, have or do not have an older sibling with ASD. With this new guideline, we are now asking members of the Network to replace the term ?risk? with ?likelihood? and to qualify the term ?likelihood? with either the terms ?high and low? or ?higher and lower?, based on whichever fits best with the text. For example, sometimes the term ?higher? can be confusing without additional text, as it leaves the reader wondering ?higher than what ??. Similarly, some might be confused by the term ?high? when the intention is that this means higher than population risk and does not imply that a child is destined to develop autism. These are some of the pro and con arguments that have been presented in support of one or the other approach. Note: use of a methods-based definition e.g., family history positive, in place of or in addition to using high/er and low/er likelihood, is acceptable. -Executive Committee Approvals -Paper proposal: Gerig; Longitudinally-consistent Contrastive Self-supervision for One-shot Segmentation -Paper proposal: Elison/Carolyn Lasch; characterizing longitudinal associations between temperament, higher-order RRBs, and internalizing On Feb 4, 2022, at 4:54 PM, Chappell, Chad <cchappel at med.unc.edu<mailto:cchappel at med.unc.edu>> wrote: IBIS Network - Week In Review February 4, 2022 -IBIS-SA sIRB Modification Approval: -University of Texas - Dallas was added to the IBIS-SA sIRB as an analysis site -The Tasso device approved for use for iPSC blood collection ***2 consents updated for all data collection sites: -iPSC Parent and iPSC Assent have been uploaded to the Document Repository -IBIS-SA IRB Documents>IBIS-SA Current Consents>All Sites Consents - DSSA data sharing with Cincinnati (Anna Esbensen) was approved -IBIS Week In Review Archive for January has been uploaded to the Document Repository (under ?IBIS Administrative Documents > IBIS_WeekInReview_January_2022?) -This document is searchable and will be updated each month _______________________________________________ Ace-recruitment mailing list Ace-recruitment at bic.mni.mcgill.ca<mailto:Ace-recruitment at bic.mni.mcgill.ca> https://mailman.bic.mni.mcgill.ca/mailman/listinfo/ace-recruitment _______________________________________________ Ace-recruitment mailing list Ace-recruitment at bic.mni.mcgill.ca<mailto:Ace-recruitment at bic.mni.mcgill.ca> https://mailman.bic.mni.mcgill.ca/mailman/listinfo/ace-recruitment -------------- next part -------------- An HTML attachment was scrubbed... URL: <http://mailman.bic.mni.mcgill.ca/pipermail/ace-recruitment/attachments/20220218/2e294f7b/attachment-0001.html> From drgray at wustl.edu Tue Feb 22 12:11:02 2022 From: drgray at wustl.edu (Gray, Daniel) Date: Tue, 22 Feb 2022 17:11:02 +0000 Subject: [Ace-recruitment] Feedback: New Facebook Advert. Message-ID: <SA2PR02MB7612CB20B79FCDC2665244D9D23B9@SA2PR02MB7612.namprd02.prod.outlook.com> Hi all -- we are exploring a new Facebook ad. We will likely run both ads to see which one has better results, but I would like to solicit your feedback on both for any suggested changes. [cid:image001.png at 01D827E4.EE7F3350] [cid:image002.png at 01D827E5.40AF6460] Daniel Gray, MSW Recruitment/Marketing Manager Washington University School of Medicine Infant Brain Imaging Study (IBIS) 1-888-845-6786 Autism Early Prediction: https://ibis-network.com/infant/ Down Syndrome: www.dsstudies.com<http://www.dsstudies.com/> ________________________________ The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail. -------------- next part -------------- An HTML attachment was scrubbed... URL: <http://mailman.bic.mni.mcgill.ca/pipermail/ace-recruitment/attachments/20220222/ef159d49/attachment-0001.html> -------------- next part -------------- A non-text attachment was scrubbed... Name: image001.png Type: image/png Size: 244667 bytes Desc: image001.png URL: <http://mailman.bic.mni.mcgill.ca/pipermail/ace-recruitment/attachments/20220222/ef159d49/attachment-0002.png> -------------- next part -------------- A non-text attachment was scrubbed... Name: image002.png Type: image/png Size: 244641 bytes Desc: image002.png URL: <http://mailman.bic.mni.mcgill.ca/pipermail/ace-recruitment/attachments/20220222/ef159d49/attachment-0003.png> From cchappel at med.unc.edu Fri Feb 25 17:11:02 2022 From: cchappel at med.unc.edu (Chappell, Chad) Date: Fri, 25 Feb 2022 22:11:02 +0000 Subject: [Ace-recruitment] IBIS Network - Week In Review - 2_25_2022 In-Reply-To: <EC7C1432-9126-4A82-A70C-BBA58D7FDFE3@med.unc.edu> References: <AF416568-4C60-482F-99B0-12E408E9D85D@med.unc.edu> <420AF40E-A6B7-405A-B7D5-8C664EFD9BD2@med.unc.edu> <1984CD5F-3505-4B08-A00D-29B5E330F599@med.unc.edu> <573C67E0-4247-4178-B88A-515E5FA04712@med.unc.edu> <E713403A-A25C-484E-8C3C-B3673D4AB8C0@med.unc.edu> <EC7C1432-9126-4A82-A70C-BBA58D7FDFE3@med.unc.edu> Message-ID: <99B236E9-539B-42F8-B04C-8F18F277D27A@med.unc.edu> IBIS Network - Week In review February 25, 2022 -MRI -Sandbags for EP and DS scans, a prior IBIS decision has been amended: ? Place a sandbag below the infant?s feet near the foot of the table. ? Only *if allowed (*and only at the discretion of the baby whisperer and MRI tech), place a sandbag on each side of the infant. ? No sandbag on the head coil. UMN may be an exception, which is fine. -Scan Parameter Forms: ?For IBIS-EP PF: the baby whisperers agreed to add one line to the top right of the form, ?Approx. time fell asleep? to the other times ?Time entered room? and ?Time scan started?. ?IBIS-EP PF: Somewhere in the comments section, add # and placement of sandbags, and whether weighted blanket was used. ?IBIS-SA: In the section ?Comments on factors that may affect scan success? there are examples given in parentheses. Please add ?# and placement of metal dental caps? -Papers -Zoe Hawk?s paper, "A Prospective Evaluation of Infant Cerebellar-Cerebral Functional Connectivity in Relation to Behavioral Development in Autism Spectrum Disorder?, is now in press with Biological Psychiatry Global Open Science! LINK<https://www.sciencedirect.com/science/article/pii/S2667174321001610?via=ihub> -Sooyeon Sung?s paper on IBQ-R measurement invariance paper was accepted for publication in Child Development. -IBIS Executive Committee approvals -Becca Grzadzinski?s 'Early Feeding Behaviors? proposal On Feb 18, 2022, at 4:37 PM, Chappell, Chad <cchappel at med.unc.edu<mailto:cchappel at med.unc.edu>> wrote: IBIS Network - Week In Review February 18, 2022 -IBIS-EP IRB Modification Approval: -Added CHLA as an IBIS-EP site -Updated the consent forms to include a new kit recovery policy for LENA -New consents are in each site?s folder in the Document Repository -UTD will reach out to the sites for information regarding the policy change On Feb 14, 2022, at 4:19 PM, Chappell, Chad <cchappel at med.unc.edu<mailto:cchappel at med.unc.edu>> wrote: IBIS Network - Week In Review February 11, 2022 -Guidelines have been adopted for terminology to be used in IBIS presentations/publications (February 2022) -Given concerns raised by some in the autism community the IBIS Network has developed guidelines regarding use of the term ?risk? in IBIS presentations/publications. In the past we have used the terms ?high risk (HR)? and ?low risk (LR)? to refer to infants who, respectively, have or do not have an older sibling with ASD. With this new guideline, we are now asking members of the Network to replace the term ?risk? with ?likelihood? and to qualify the term ?likelihood? with either the terms ?high and low? or ?higher and lower?, based on whichever fits best with the text. For example, sometimes the term ?higher? can be confusing without additional text, as it leaves the reader wondering ?higher than what ??. Similarly, some might be confused by the term ?high? when the intention is that this means higher than population risk and does not imply that a child is destined to develop autism. These are some of the pro and con arguments that have been presented in support of one or the other approach. Note: use of a methods-based definition e.g., family history positive, in place of or in addition to using high/er and low/er likelihood, is acceptable. -Executive Committee Approvals -Paper proposal: Gerig; Longitudinally-consistent Contrastive Self-supervision for One-shot Segmentation -Paper proposal: Elison/Carolyn Lasch; characterizing longitudinal associations between temperament, higher-order RRBs, and internalizing On Feb 4, 2022, at 4:54 PM, Chappell, Chad <cchappel at med.unc.edu<mailto:cchappel at med.unc.edu>> wrote: IBIS Network - Week In Review February 4, 2022 -IBIS-SA sIRB Modification Approval: -University of Texas - Dallas was added to the IBIS-SA sIRB as an analysis site -The Tasso device approved for use for iPSC blood collection ***2 consents updated for all data collection sites: -iPSC Parent and iPSC Assent have been uploaded to the Document Repository -IBIS-SA IRB Documents>IBIS-SA Current Consents>All Sites Consents - DSSA data sharing with Cincinnati (Anna Esbensen) was approved -IBIS Week In Review Archive for January has been uploaded to the Document Repository (under ?IBIS Administrative Documents > IBIS_WeekInReview_January_2022?) -This document is searchable and will be updated each month _______________________________________________ Ace-recruitment mailing list Ace-recruitment at bic.mni.mcgill.ca<mailto:Ace-recruitment at bic.mni.mcgill.ca> https://mailman.bic.mni.mcgill.ca/mailman/listinfo/ace-recruitment _______________________________________________ Ace-recruitment mailing list Ace-recruitment at bic.mni.mcgill.ca<mailto:Ace-recruitment at bic.mni.mcgill.ca> https://mailman.bic.mni.mcgill.ca/mailman/listinfo/ace-recruitment _______________________________________________ Ace-recruitment mailing list Ace-recruitment at bic.mni.mcgill.ca<mailto:Ace-recruitment at bic.mni.mcgill.ca> https://mailman.bic.mni.mcgill.ca/mailman/listinfo/ace-recruitment -------------- next part -------------- An HTML attachment was scrubbed... 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