From cchappel at med.unc.edu Fri Apr 1 16:54:52 2022 From: cchappel at med.unc.edu (Chappell, Chad) Date: Fri, 1 Apr 2022 20:54:52 +0000 Subject: [Ace-recruitment] IBIS Network - Week In Review - 4_1_2022 In-Reply-To: <4A540B0E-DEBB-4A7B-A731-3E1B3BCC7052@med.unc.edu> References: <420AF40E-A6B7-405A-B7D5-8C664EFD9BD2@med.unc.edu> <1984CD5F-3505-4B08-A00D-29B5E330F599@med.unc.edu> <573C67E0-4247-4178-B88A-515E5FA04712@med.unc.edu> <99B236E9-539B-42F8-B04C-8F18F277D27A@med.unc.edu> <83C51B60-5A1A-4C6B-9C8F-AAEFF393A1FE@med.unc.edu> <812D74D7-CFFB-4C1F-96D4-69203EA62578@med.unc.edu> <747B0C42-28CB-45D7-A4F4-F60CA9868F9A@med.unc.edu> <4A540B0E-DEBB-4A7B-A731-3E1B3BCC7052@med.unc.edu> Message-ID: <94091700-BA20-4FB5-A2E8-E87E557A3FE8@med.unc.edu> IBIS Week In Review 4/1/2022 - IBIS-EP -IRB Modification Approval -updated the TSI to remove twins/multiple births from being exclusionary -IBIS-Sleep -CHOP was IRB approved for data Sleep Project collection On Mar 25, 2022, at 4:52 PM, Chappell, Chad > wrote: IBIS Week In Review 3/25/2022 -IBIS nationwide press release for recent publication: - Shen (et al.): Subcortical Brain Development in Autism and Fragile X Syndrome: Evidence for Dynamic, Age- and Disorder-Specific Trajectories in Infancy in AJP -UNC Press Release -IBIS-EC Approval: - Project Proposal (Burrows) Subgrouping within the VSA data based on clinically-relevant features On Mar 18, 2022, at 5:09 PM, Chappell, Chad > wrote: IBIS Week In Review 3/18/2022 -IBIS-EC Approval: -Unstable Diagnosis Workgroup, headed up by Becca -This new workgroup plans to look at unstable diagnoses in the IBIS dataset to 1) Create a formalized diagnostic impression through a review of all available information on each case, 2.) Generate ideas for a related manuscript, and 3) characterize first-time school-age ASD diagnosed females in our sample (aim associated with sex differences workgroup) -Please let Becca know if you would like to be added to this workgroup. On Mar 11, 2022, at 4:32 PM, Chappell, Chad > wrote: IBIS Week In Review 3/11/2022 -IBIS-EP: -Probands who are twins were confirmed to be non-exclusionary. -New Eye Tracking calibration stimulus was implemented. - LORIS: A delete button/feature was added to the DQT for saved queries. -IBIS Executive Committee: -Proposal Approved: Caravella - cognitive trajectories to define subgroups in the HL sample. -Will be presented on 3/23 IBIS Analysis Workgroup call. On Mar 4, 2022, at 5:01 PM, Chappell, Chad > wrote: IBIS Week In Review 3/4/2022 - Sleep Project: -Expanded enrollment age to include down to 4 years old -Waived assent of 4 to 6 years old -Updated consent and assent forms to remove signature lines due to waived documentation of signed consent/assent -Papers: -Jessica's paper, "Brain imaging markers of inherited liability for autism implicate infant visual regions and pathways" has been accepted to The American Journal of Psychiatry!!! -Archive of IBIS Week In Reviews, through Feb., uploaded to the LORIS Document Repository -Root > IBIS Administrative Documents _______________________________________________ Ace-recruitment mailing list Ace-recruitment at bic.mni.mcgill.ca https://mailman.bic.mni.mcgill.ca/mailman/listinfo/ace-recruitment _______________________________________________ Ace-recruitment mailing list Ace-recruitment at bic.mni.mcgill.ca https://mailman.bic.mni.mcgill.ca/mailman/listinfo/ace-recruitment -------------- next part -------------- An HTML attachment was scrubbed... URL: From rebecca_grzadzinski at med.unc.edu Fri Apr 1 18:07:09 2022 From: rebecca_grzadzinski at med.unc.edu (Grzadzinski, Rebecca Lynn) Date: Fri, 1 Apr 2022 22:07:09 +0000 Subject: [Ace-recruitment] IBIS Network - Week In Review - 4_1_2022 In-Reply-To: <94091700-BA20-4FB5-A2E8-E87E557A3FE8@med.unc.edu> References: <420AF40E-A6B7-405A-B7D5-8C664EFD9BD2@med.unc.edu> <1984CD5F-3505-4B08-A00D-29B5E330F599@med.unc.edu> <573C67E0-4247-4178-B88A-515E5FA04712@med.unc.edu> <99B236E9-539B-42F8-B04C-8F18F277D27A@med.unc.edu> <83C51B60-5A1A-4C6B-9C8F-AAEFF393A1FE@med.unc.edu> <812D74D7-CFFB-4C1F-96D4-69203EA62578@med.unc.edu> <747B0C42-28CB-45D7-A4F4-F60CA9868F9A@med.unc.edu> <4A540B0E-DEBB-4A7B-A731-3E1B3BCC7052@med.unc.edu> <94091700-BA20-4FB5-A2E8-E87E557A3FE8@med.unc.edu> Message-ID: Hi Chad? to be clear? the IRB modification re: twins is applicable to the proband but not the subject in IBIS. Is this right? Rebecca Grzadzinski, PhD (she/her/hers) Research Assistant Professor University of North Carolina (UNC) Carolina Institute for Developmental Disabilities (CIDD) 100 Renee Lynne Ct. Carrboro, NC 27510 Phone: 919-843-5437 CONFIDENTIALITY NOTICE: This e-mail message, including any attachments, is for the sole use of the intended recipients and may contain confidential and privileged information. Any unauthorized review, use, disclosure or distribution is prohibited. If you are not the intended recipient, please contact the sender by reply e-mail and destroy all copies of the original message. Thank you! ________________________________ From: ace-behavioral-bounces at bic.mni.mcgill.ca on behalf of Chappell, Chad Sent: Friday, April 1, 2022 4:54:52 PM To: ace-project ; ace-coordinator at bic.mni.mcgill.ca ; ace-behavioral at bic.mni.mcgill.ca ; Ace-mri ; Ace-recruitment at bic.mni.mcgill.ca ; ace-acquisition at bic.mni.mcgill.ca Subject: [Ace-behavioral] IBIS Network - Week In Review - 4_1_2022 IBIS Week In Review 4/1/2022 - IBIS-EP -IRB Modification Approval -updated the TSI to remove twins/multiple births from being exclusionary -IBIS-Sleep -CHOP was IRB approved for data Sleep Project collection On Mar 25, 2022, at 4:52 PM, Chappell, Chad > wrote: IBIS Week In Review 3/25/2022 -IBIS nationwide press release for recent publication: - Shen (et al.): Subcortical Brain Development in Autism and Fragile X Syndrome: Evidence for Dynamic, Age- and Disorder-Specific Trajectories in Infancy in AJP -UNC Press Release -IBIS-EC Approval: - Project Proposal (Burrows) Subgrouping within the VSA data based on clinically-relevant features On Mar 18, 2022, at 5:09 PM, Chappell, Chad > wrote: IBIS Week In Review 3/18/2022 -IBIS-EC Approval: -Unstable Diagnosis Workgroup, headed up by Becca -This new workgroup plans to look at unstable diagnoses in the IBIS dataset to 1) Create a formalized diagnostic impression through a review of all available information on each case, 2.) Generate ideas for a related manuscript, and 3) characterize first-time school-age ASD diagnosed females in our sample (aim associated with sex differences workgroup) -Please let Becca know if you would like to be added to this workgroup. On Mar 11, 2022, at 4:32 PM, Chappell, Chad > wrote: IBIS Week In Review 3/11/2022 -IBIS-EP: -Probands who are twins were confirmed to be non-exclusionary. -New Eye Tracking calibration stimulus was implemented. - LORIS: A delete button/feature was added to the DQT for saved queries. -IBIS Executive Committee: -Proposal Approved: Caravella - cognitive trajectories to define subgroups in the HL sample. -Will be presented on 3/23 IBIS Analysis Workgroup call. On Mar 4, 2022, at 5:01 PM, Chappell, Chad > wrote: IBIS Week In Review 3/4/2022 - Sleep Project: -Expanded enrollment age to include down to 4 years old -Waived assent of 4 to 6 years old -Updated consent and assent forms to remove signature lines due to waived documentation of signed consent/assent -Papers: -Jessica's paper, "Brain imaging markers of inherited liability for autism implicate infant visual regions and pathways" has been accepted to The American Journal of Psychiatry!!! -Archive of IBIS Week In Reviews, through Feb., uploaded to the LORIS Document Repository -Root > IBIS Administrative Documents _______________________________________________ Ace-recruitment mailing list Ace-recruitment at bic.mni.mcgill.ca https://mailman.bic.mni.mcgill.ca/mailman/listinfo/ace-recruitment _______________________________________________ Ace-recruitment mailing list Ace-recruitment at bic.mni.mcgill.ca https://mailman.bic.mni.mcgill.ca/mailman/listinfo/ace-recruitment -------------- next part -------------- An HTML attachment was scrubbed... URL: From roccaa at wustl.edu Thu Apr 7 16:27:15 2022 From: roccaa at wustl.edu (Rocca, Alicia) Date: Thu, 7 Apr 2022 20:27:15 +0000 Subject: [Ace-recruitment] IBIS Network - Week In Review - 4_1_2022 In-Reply-To: References: <420AF40E-A6B7-405A-B7D5-8C664EFD9BD2@med.unc.edu> <1984CD5F-3505-4B08-A00D-29B5E330F599@med.unc.edu> <573C67E0-4247-4178-B88A-515E5FA04712@med.unc.edu> <99B236E9-539B-42F8-B04C-8F18F277D27A@med.unc.edu> <83C51B60-5A1A-4C6B-9C8F-AAEFF393A1FE@med.unc.edu> <812D74D7-CFFB-4C1F-96D4-69203EA62578@med.unc.edu> <747B0C42-28CB-45D7-A4F4-F60CA9868F9A@med.unc.edu> <4A540B0E-DEBB-4A7B-A731-3E1B3BCC7052@med.unc.edu> <94091700-BA20-4FB5-A2E8-E87E557A3FE8@med.unc.edu> Message-ID: Hello. The TSI has been updated to more clearly reflect that twins/multiple birth subjects are excluded but twin/multiple birth probands are not. Thanks, Alicia ________________________________ From: ace-project-bounces at bic.mni.mcgill.ca on behalf of Grzadzinski, Rebecca Lynn Sent: Friday, April 1, 2022 5:07 PM To: Chappell, Chad ; ace-project ; ace-coordinator at bic.mni.mcgill.ca ; ace-behavioral at bic.mni.mcgill.ca ; Ace-mri ; Ace-recruitment at bic.mni.mcgill.ca ; ace-acquisition at bic.mni.mcgill.ca Subject: Re: [Ace-project] IBIS Network - Week In Review - 4_1_2022 * External Email - Caution * Hi Chad? to be clear? the IRB modification re: twins is applicable to the proband but not the subject in IBIS. Is this right? Rebecca Grzadzinski, PhD (she/her/hers) Research Assistant Professor University of North Carolina (UNC) Carolina Institute for Developmental Disabilities (CIDD) 100 Renee Lynne Ct. Carrboro, NC 27510 Phone: 919-843-5437 CONFIDENTIALITY NOTICE: This e-mail message, including any attachments, is for the sole use of the intended recipients and may contain confidential and privileged information. Any unauthorized review, use, disclosure or distribution is prohibited. If you are not the intended recipient, please contact the sender by reply e-mail and destroy all copies of the original message. Thank you! ________________________________ From: ace-behavioral-bounces at bic.mni.mcgill.ca on behalf of Chappell, Chad Sent: Friday, April 1, 2022 4:54:52 PM To: ace-project ; ace-coordinator at bic.mni.mcgill.ca ; ace-behavioral at bic.mni.mcgill.ca ; Ace-mri ; Ace-recruitment at bic.mni.mcgill.ca ; ace-acquisition at bic.mni.mcgill.ca Subject: [Ace-behavioral] IBIS Network - Week In Review - 4_1_2022 IBIS Week In Review 4/1/2022 - IBIS-EP -IRB Modification Approval -updated the TSI to remove twins/multiple births from being exclusionary -IBIS-Sleep -CHOP was IRB approved for data Sleep Project collection On Mar 25, 2022, at 4:52 PM, Chappell, Chad > wrote: IBIS Week In Review 3/25/2022 -IBIS nationwide press release for recent publication: - Shen (et al.): Subcortical Brain Development in Autism and Fragile X Syndrome: Evidence for Dynamic, Age- and Disorder-Specific Trajectories in Infancy in AJP -UNC Press Release -IBIS-EC Approval: - Project Proposal (Burrows) Subgrouping within the VSA data based on clinically-relevant features On Mar 18, 2022, at 5:09 PM, Chappell, Chad > wrote: IBIS Week In Review 3/18/2022 -IBIS-EC Approval: -Unstable Diagnosis Workgroup, headed up by Becca -This new workgroup plans to look at unstable diagnoses in the IBIS dataset to 1) Create a formalized diagnostic impression through a review of all available information on each case, 2.) Generate ideas for a related manuscript, and 3) characterize first-time school-age ASD diagnosed females in our sample (aim associated with sex differences workgroup) -Please let Becca know if you would like to be added to this workgroup. On Mar 11, 2022, at 4:32 PM, Chappell, Chad > wrote: IBIS Week In Review 3/11/2022 -IBIS-EP: -Probands who are twins were confirmed to be non-exclusionary. -New Eye Tracking calibration stimulus was implemented. - LORIS: A delete button/feature was added to the DQT for saved queries. -IBIS Executive Committee: -Proposal Approved: Caravella - cognitive trajectories to define subgroups in the HL sample. -Will be presented on 3/23 IBIS Analysis Workgroup call. On Mar 4, 2022, at 5:01 PM, Chappell, Chad > wrote: IBIS Week In Review 3/4/2022 - Sleep Project: -Expanded enrollment age to include down to 4 years old -Waived assent of 4 to 6 years old -Updated consent and assent forms to remove signature lines due to waived documentation of signed consent/assent -Papers: -Jessica's paper, "Brain imaging markers of inherited liability for autism implicate infant visual regions and pathways" has been accepted to The American Journal of Psychiatry!!! -Archive of IBIS Week In Reviews, through Feb., uploaded to the LORIS Document Repository -Root > IBIS Administrative Documents _______________________________________________ Ace-recruitment mailing list Ace-recruitment at bic.mni.mcgill.ca https://mailman.bic.mni.mcgill.ca/mailman/listinfo/ace-recruitment _______________________________________________ Ace-recruitment mailing list Ace-recruitment at bic.mni.mcgill.ca https://mailman.bic.mni.mcgill.ca/mailman/listinfo/ace-recruitment ________________________________ The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail. -------------- next part -------------- An HTML attachment was scrubbed... URL: From cchappel at med.unc.edu Fri Apr 8 16:53:21 2022 From: cchappel at med.unc.edu (Chappell, Chad) Date: Fri, 8 Apr 2022 20:53:21 +0000 Subject: [Ace-recruitment] IBIS Network - Week In Review - 4_8_2022 In-Reply-To: <94091700-BA20-4FB5-A2E8-E87E557A3FE8@med.unc.edu> References: <420AF40E-A6B7-405A-B7D5-8C664EFD9BD2@med.unc.edu> <1984CD5F-3505-4B08-A00D-29B5E330F599@med.unc.edu> <573C67E0-4247-4178-B88A-515E5FA04712@med.unc.edu> <99B236E9-539B-42F8-B04C-8F18F277D27A@med.unc.edu> <83C51B60-5A1A-4C6B-9C8F-AAEFF393A1FE@med.unc.edu> <812D74D7-CFFB-4C1F-96D4-69203EA62578@med.unc.edu> <747B0C42-28CB-45D7-A4F4-F60CA9868F9A@med.unc.edu> <4A540B0E-DEBB-4A7B-A731-3E1B3BCC7052@med.unc.edu> <94091700-BA20-4FB5-A2E8-E87E557A3FE8@med.unc.edu> Message-ID: <6F2F95C7-0BEC-4ADC-84ED-775883841F23@med.unc.edu> IBIS Week In Review 4/8/2022 -All Projects -The IBIS Exclusion List for all projects has been updated and is available here: https://wustl.app.box.com/s/qfoznetqger7giwpmx0k3gp2v1zwcwns -IBIS EP -Clarification of prior Modification: The TSI was updated (4/1/22) to more clearly reflect that twins/multiple birth subjects are excluded, but twin/multiple birth probands are not. - IBIS Adolescent Submission -Received score of 24, appears likely to be funded -Archive of IBIS Week In Reviews, through March, uploaded to the LORIS Document Repository -Root > IBIS Administrative Documents On Apr 1, 2022, at 4:54 PM, Chappell, Chad > wrote: IBIS Week In Review 4/1/2022 - IBIS-EP -IRB Modification Approval -updated the TSI to remove twins/multiple births from being exclusionary -IBIS-Sleep -CHOP was IRB approved for data Sleep Project collection -------------- next part -------------- An HTML attachment was scrubbed... URL: From drgray at wustl.edu Wed Apr 13 15:38:10 2022 From: drgray at wustl.edu (Gray, Daniel) Date: Wed, 13 Apr 2022 19:38:10 +0000 Subject: [Ace-recruitment] 4/19 IBIS Recruitment Meeting Message-ID: Hi all ? just a reminder that our next monthly recruitment call is Tuesday, April 19 from 11:30-12:30 Central. Please update the agenda with your site?s recruitment totals as well as the log. During our meeting next week, we?d like to spend a little extra time discussing what efforts sites are making on recruiting Down syndrome infants, so please be prepared to discuss. Let me know if you have any particular agenda items to discuss. I look forward to catching up with you all on how recruitment is going. Meeting Link: https://wustl-hipaa.zoom.us/j/92135972316 Link to Agenda/Recruitment Workgroup Folder Thanks, Daniel Daniel Gray, MSW Recruitment/Markerting Manager Washington University School of Medicine Infant Brain Imaging Study (IBIS) 1-888-845-6786 Autism Early Prediction: www.autismbabybrain.com Down Syndrome: www.dsstudies.com ________________________________ The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail. ________________________________ The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail. -------------- next part -------------- An HTML attachment was scrubbed... URL: From cchappel at med.unc.edu Fri Apr 22 17:19:02 2022 From: cchappel at med.unc.edu (Chappell, Chad) Date: Fri, 22 Apr 2022 21:19:02 +0000 Subject: [Ace-recruitment] IBIS Network - Week In Review - 4_22_2022 In-Reply-To: <6F2F95C7-0BEC-4ADC-84ED-775883841F23@med.unc.edu> References: <420AF40E-A6B7-405A-B7D5-8C664EFD9BD2@med.unc.edu> <1984CD5F-3505-4B08-A00D-29B5E330F599@med.unc.edu> <573C67E0-4247-4178-B88A-515E5FA04712@med.unc.edu> <99B236E9-539B-42F8-B04C-8F18F277D27A@med.unc.edu> <83C51B60-5A1A-4C6B-9C8F-AAEFF393A1FE@med.unc.edu> <812D74D7-CFFB-4C1F-96D4-69203EA62578@med.unc.edu> <747B0C42-28CB-45D7-A4F4-F60CA9868F9A@med.unc.edu> <4A540B0E-DEBB-4A7B-A731-3E1B3BCC7052@med.unc.edu> <94091700-BA20-4FB5-A2E8-E87E557A3FE8@med.unc.edu> <6F2F95C7-0BEC-4ADC-84ED-775883841F23@med.unc.edu> Message-ID: IBIS Week In Review 4/22/2022 -IBIS-SA New Focused effort to increase SA subject pool has begun This will include reaching out to any SA families that opted out during COVID, contacting SA non-priority subjects as well as possibly reaching out to other sibling projects and/or filling in with cross sectional subjects. The details will be ironed out on Bx and LG calls. IRB Mod Approved A new consent has been added that will be required going forward for texting families without encryption. UNC is testing a secure texting system (RingCentral) and will share our thoughts with the sites soon. All related documents have been sent to the sites and are uploaded to LORIS. -IBIS-EC Project Approval Updates to Rebecca Grzadzinski?s Pupillary Project were approved, involving new award opportunities and hypotheses. -IBIS-MRI Scan uploads will now be automatically (as opposed to manually) processed nightly On Apr 8, 2022, at 4:53 PM, Chappell, Chad > wrote: IBIS Week In Review 4/8/2022 -All Projects -The IBIS Exclusion List for all projects has been updated and is available here: https://wustl.app.box.com/s/qfoznetqger7giwpmx0k3gp2v1zwcwns -IBIS EP -Clarification of prior Modification: The TSI was updated (4/1/22) to more clearly reflect that twins/multiple birth subjects are excluded, but twin/multiple birth probands are not. - IBIS Adolescent Submission -Received score of 24, appears likely to be funded -Archive of IBIS Week In Reviews, through March, uploaded to the LORIS Document Repository -Root > IBIS Administrative Documents On Apr 1, 2022, at 4:54 PM, Chappell, Chad > wrote: IBIS Week In Review 4/1/2022 - IBIS-EP -IRB Modification Approval -updated the TSI to remove twins/multiple births from being exclusionary -IBIS-Sleep -CHOP was IRB approved for data Sleep Project collection _______________________________________________ Ace-acquisition mailing list Ace-acquisition at bic.mni.mcgill.ca https://mailman.bic.mni.mcgill.ca/mailman/listinfo/ace-acquisition -------------- next part -------------- An HTML attachment was scrubbed... URL: From drgray at wustl.edu Tue Apr 26 15:55:01 2022 From: drgray at wustl.edu (Gray, Daniel) Date: Tue, 26 Apr 2022 19:55:01 +0000 Subject: [Ace-recruitment] Draft of Online Ads for EP Message-ID: Hi all -- See the attached image and provide me any thoughts/feedback. (Try to imagine you've never heard of IBIS and whether this ad piques your interest enough for the study.) We'll be using several different size ads, but the content will remain the same with slightly different layout arrangements. This would be our ad set for any of the paid advertising done online with Huddled Masses. They liked our prior 15 second video, so we will also use that for video ad placements. Thanks, Daniel Daniel Gray, MSW Recruitment/Marketing Manager Washington University School of Medicine Infant Brain Imaging Study (IBIS) 1-888-845-6786 Autism Early Prediction: https://ibis-network.com/infant/ Down Syndrome: www.dsstudies.com ________________________________ The materials in this message are private and may contain Protected Healthcare Information or other information of a sensitive nature. If you are not the intended recipient, be advised that any unauthorized use, disclosure, copying or the taking of any action in reliance on the contents of this information is strictly prohibited. If you have received this email in error, please immediately notify the sender via telephone or return mail. -------------- next part -------------- An HTML attachment was scrubbed... URL: -------------- next part -------------- A non-text attachment was scrubbed... Name: Ad 1.JPG Type: image/jpeg Size: 95378 bytes Desc: Ad 1.JPG URL: From cchappel at med.unc.edu Fri Apr 29 14:53:40 2022 From: cchappel at med.unc.edu (Chappell, Chad) Date: Fri, 29 Apr 2022 18:53:40 +0000 Subject: [Ace-recruitment] IBIS Network - Week In Review - 4_29_2022 In-Reply-To: References: <420AF40E-A6B7-405A-B7D5-8C664EFD9BD2@med.unc.edu> <1984CD5F-3505-4B08-A00D-29B5E330F599@med.unc.edu> <573C67E0-4247-4178-B88A-515E5FA04712@med.unc.edu> <99B236E9-539B-42F8-B04C-8F18F277D27A@med.unc.edu> <83C51B60-5A1A-4C6B-9C8F-AAEFF393A1FE@med.unc.edu> <812D74D7-CFFB-4C1F-96D4-69203EA62578@med.unc.edu> <747B0C42-28CB-45D7-A4F4-F60CA9868F9A@med.unc.edu> <4A540B0E-DEBB-4A7B-A731-3E1B3BCC7052@med.unc.edu> <94091700-BA20-4FB5-A2E8-E87E557A3FE8@med.unc.edu> <6F2F95C7-0BEC-4ADC-84ED-775883841F23@med.unc.edu> Message-ID: IBIS Week In Review 4/29/2022 -IBIS Executive Committee: ESLI and iPSC Interviews Kate MacDuffie is writing up for publication the qualitative interview data collected as part of two projects: ELSI interviews with IBIS-EP families (from SEA, UMN and UNC) iPSC interviews with IBIS-SA families (from SEA, STL, UNC and PHI). These papers will describe results of qualitative interviews conducted with IBIS parents as well as other families impacted by disorders other than autism. The Publication Matrix was also agreed upon and updated for authorship on the use of this data. -Papers The UMN IBQ-R paper is now available online (though not yet in PubMed). http://doi.org/10.1111/cdev.13781 Congrats to Sooyeon, Jed and team! -Week In review archived through April. 2022 in LORIS Document Repository On Apr 22, 2022, at 5:19 PM, Chappell, Chad > wrote: IBIS Week In Review 4/22/2022 -IBIS-SA New Focused effort to increase SA subject pool has begun This will include reaching out to any SA families that opted out during COVID, contacting SA non-priority subjects as well as possibly reaching out to other sibling projects and/or filling in with cross sectional subjects. The details will be ironed out on Bx and LG calls. IRB Mod Approved A new consent has been added that will be required going forward for texting families without encryption. UNC is testing a secure texting system (RingCentral) and will share our thoughts with the sites soon. All related documents have been sent to the sites and are uploaded to LORIS. -IBIS-EC Project Approval Updates to Rebecca Grzadzinski?s Pupillary Project were approved, involving new award opportunities and hypotheses. -IBIS-MRI Scan uploads will now be automatically (as opposed to manually) processed nightly On Apr 8, 2022, at 4:53 PM, Chappell, Chad > wrote: IBIS Week In Review 4/8/2022 -All Projects -The IBIS Exclusion List for all projects has been updated and is available here: https://wustl.app.box.com/s/qfoznetqger7giwpmx0k3gp2v1zwcwns -IBIS EP -Clarification of prior Modification: The TSI was updated (4/1/22) to more clearly reflect that twins/multiple birth subjects are excluded, but twin/multiple birth probands are not. - IBIS Adolescent Submission -Received score of 24, appears likely to be funded -Archive of IBIS Week In Reviews, through March, uploaded to the LORIS Document Repository -Root > IBIS Administrative Documents On Apr 1, 2022, at 4:54 PM, Chappell, Chad > wrote: IBIS Week In Review 4/1/2022 - IBIS-EP -IRB Modification Approval -updated the TSI to remove twins/multiple births from being exclusionary -IBIS-Sleep -CHOP was IRB approved for data Sleep Project collection _______________________________________________ Ace-acquisition mailing list Ace-acquisition at bic.mni.mcgill.ca https://mailman.bic.mni.mcgill.ca/mailman/listinfo/ace-acquisition -------------- next part -------------- An HTML attachment was scrubbed... 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