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<span class="" style="font-family: LucidaGrande;">IBIS Week In Review<br class="">
</span><span class="" style="font-family: LucidaGrande;">4/29/2022</span></div>
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<font face="LucidaGrande" class="">-IBIS Executive Committee: </font></div>
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<font face="LucidaGrande" class=""><span class="Apple-tab-span" style="white-space:pre"></span>ESLI and iPSC Interviews</font></div>
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<font face="LucidaGrande" class="">Kate MacDuffie is writing up for publication the qualitative interview data collected as part of two projects: </font></div>
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<blockquote style="margin: 0 0 0 40px; border: none; padding: 0px;" class=""><font face="LucidaGrande" class="">ELSI interviews with IBIS-EP families (from SEA, UMN and UNC)</font></blockquote>
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<blockquote style="margin: 0 0 0 40px; border: none; padding: 0px;" class=""><font face="LucidaGrande" class="">iPSC interviews with IBIS-SA families (from SEA, STL, UNC and PHI). </font></blockquote>
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<blockquote style="margin: 0 0 0 40px; border: none; padding: 0px;" class=""><font face="LucidaGrande" class="">These papers will describe results of qualitative interviews conducted with IBIS parents as well as other families impacted by disorders other than
autism.</font></blockquote>
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<div class=""><font face="LucidaGrande" class="">The Publication Matrix was also agreed upon and updated for authorship on the use of this data.</font></div>
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<div>-Papers</div>
<div><span class="Apple-tab-span" style="white-space:pre"></span>The UMN IBQ-R paper is now available online (though not yet in PubMed).</div>
<span class="Apple-tab-span" style="white-space:pre"> </span><a href="http://doi.org/10.1111/cdev.13781" class="">http://doi.org/10.1111/cdev.13781</a><br class="">
<span class="Apple-tab-span" style="white-space:pre"> </span>Congrats to Sooyeon, Jed and team!
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<div>-Week In review archived through April. 2022 in LORIS Document Repository</div>
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<div class="">On Apr 22, 2022, at 5:19 PM, Chappell, Chad <<a href="mailto:cchappel@med.unc.edu" class="">cchappel@med.unc.edu</a>> wrote:</div>
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<span style="caret-color: rgb(0, 0, 0); font-family: LucidaGrande;" class="">IBIS Week In Review<br class="">
</span><span style="caret-color: rgb(0, 0, 0); font-family: LucidaGrande;" class="">4/22/2022</span>
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<div class="">-IBIS-SA</div>
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New Focused effort to increase SA subject pool has begun</blockquote>
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This will include reaching out to any SA families that opted out during COVID, contacting SA non-priority subjects as well as possibly reaching out to other sibling projects and/or filling in with cross sectional subjects.</blockquote>
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<div class="">The details will be ironed out on Bx and LG calls.</div>
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IRB Mod Approved<br class="">
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<span style="caret-color: rgb(0, 0, 0);" class="">A new consent has been added </span>that will be required going forward for texting families without encryption.<br class="">
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UNC is testing a secure texting system (RingCentral) and will share our thoughts with the sites soon.<br class="">
All related documents have been sent to the sites and are uploaded to LORIS.</blockquote>
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<div style="caret-color: rgb(0, 0, 0);" class="">-IBIS-EC </div>
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Project Approval</blockquote>
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Updates to Rebecca Grzadzinski’s Pupillary Project were approved, involving new award opportunities and hypotheses.</blockquote>
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<div class="">-IBIS-MRI</div>
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Scan uploads will now be automatically <span style="caret-color: rgb(0, 0, 0);" class="">(as opposed to manually) </span>processed nightly </blockquote>
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<div class="">On Apr 8, 2022, at 4:53 PM, Chappell, Chad <<a href="mailto:cchappel@med.unc.edu" class="">cchappel@med.unc.edu</a>> wrote:</div>
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IBIS Week In Review
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<div class="">-All Projects</div>
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<div class="">-The IBIS Exclusion List for all projects has been updated and is available here:
<a href="https://wustl.app.box.com/s/qfoznetqger7giwpmx0k3gp2v1zwcwns" class="">https://wustl.app.box.com/s/qfoznetqger7giwpmx0k3gp2v1zwcwns</a></div>
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<div class="">-IBIS EP</div>
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<div class="">-Clarification of prior Modification: The TSI was updated (4/1/22) to more clearly reflect that twins/multiple birth subjects are excluded, but twin/multiple birth probands are not.</div>
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<div class="">- IBIS Adolescent Submission</div>
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<div class="">-Received score of 24, appears likely to be funded</div>
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<div class="">-Archive of IBIS Week In Reviews, through March, uploaded to the LORIS Document Repository <br class="">
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<div class="">-Root > IBIS Administrative Documents</div>
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<div class="">On Apr 1, 2022, at 4:54 PM, Chappell, Chad <<a href="mailto:cchappel@med.unc.edu" class="">cchappel@med.unc.edu</a>> wrote:</div>
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IBIS Week In Review <br class="">
4/1/2022 </div>
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- IBIS-EP </div>
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-IRB Modification Approval</div>
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-updated the TSI to remove twins/multiple births from being exclusionary</div>
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-IBIS-Sleep</div>
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-CHOP was IRB approved for data Sleep Project collection</div>
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